In the last week, how much sleep have you averaged every night?
In the last week, how long has it taken you to fully get going each morning?
In the last week, how much fatigue have you experienced?
In the last week, how much has your AS affected your family life?
In the last week, how much has your AS affected your work life?
In the last week, how often have you been active, for example done your daily stretches or gone for a walk or run?
Which 2 aspects of how AS affects you would you most like to improve?
Excellent, you've finished.
SO WHAT NEXT?...
Download your answers and set a diary reminder to come back and do it again soon. This way you can build up a picture of your condition over time and can take this with you when you next see your healthcare team.
Note, the download also includes some additional questions for you to fill out by hand that will help you keep track of your condition. Print the sheets and keep them all together so when you next meet your doctor you can ensure you cover off everything you need to discuss.
Thanks for downloading your answers.
NOW WHY NOT SET A CALENDAR REMINDER?
Click on the boxes below to set a calendar reminder to regularly complete these questions. This way you can monitor and build up a clear picture of how your condition is progressing to discuss when you next have an appointment with your doctor. Simply complete the form below.
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These questions have been developed by a group of people with AS and relevant healthcare professionals. No personal data is collected from your answers - read more.
If you use the questionnaire functionality of this website, your answers are only stored on your device. If you request a PDF download of your answers, they are sent in encrypted form to Amazon Web Services EMEA SARL (Amazon) while the PDF is generated. Amazon cannot read your answers and they are immediately destroyed by Amazon after the PDF has been sent to your device. We use “Google Analytics” (provided by Google Inc.) to monitor responses to the questionnaire on an aggregate, anonymised basis. The questionnaire does not require you to provide any Personal Data and Novartis does not collect Personal Data from questionnaire responses.
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Effective conversations with your rheumatologist, GP, nurse or physiotherapist are key to a better quality of life when living with AS.
Working together you can set goals. To help you, we’ve developed the quick questions above. These will help highlight the main concerns you have with AS and act as a reminder of the key points you want to discuss in your next appointment.
And because time with your healthcare team may often be limited, it's a good idea to be prepared in advance. By answering the questions ahead of your appointment you’ll focus on how AS is affecting you, how to communicate that and whether you’re achieving the goals you and your doctor have set.
It's quick to do...
① Answer the simple questions above
② Download and print your answers
③ Discuss your results at your next appointment
My name is Raj and 24 years ago I was diagnosed with AS. I set my AS goal to do a 5K walk - now I run marathons.
When I took up running I found it really helped with management of the pain and flares. Now I train 5 days a week and regularly take part in fundraising events raising money for the National Axial Spondyloarthritis Society (NASS).
In 2014 I became the Chair of NASS, a charity dedicated to supporting people with ankylosing spondylitis.
Here you'll find links to information and additional support from NASS.
AS is an inflammatory arthritis where the main symptom is back pain. Symptoms also include early morning stiffness, fatigue and tiredness.