Ankylosing Spondylitis - Shape Your AS Future

 

NASS in partnership with Novartis
For further information about COVID-19 and Ankylosing Spondylitis please click here to see the information from NASS.
This website is part of a programme that is funded by Novartis Pharmaceuticals UK Limited, and has been developed in association with the National Axial Spondyloarthritis Society (NASS).
 
 
 
 
 
Advances in rheumatology mean that achieving the goals you set with your doctor can now be a reality for many people.
It’s a good idea to monitor your condition on a regular basis.
By using the questionnaire below, you can keep a close eye on your AS and how it’s affecting your lifestyle.
It's recommended that you complete this and download the results regularly so you can build a diary of your condition. This way you can share a more detailed picture of your AS the next time you see your healthcare professional, so together you can set goals to help shape your AS future.
Q1.

In the last week, how much sleep have you averaged every night?


Under 4 hours

4-6 hours

6-8 hours

Over 8 hours
Q2.

In the last week, how long has it taken you to fully get going each morning?


A few minutes or less

Around an hour

Over an hour

I never fully get going
Q3.

In the last week, how much fatigue have you experienced?


Little or no fatigue

I've felt fatigue on a few days but it hasn't bothered me

Fatigue is a problem a lot of the time

Not applicable
Q4.

In the last week, how much has your AS affected your family life?


It has had no effect

My family life has been slightly affected

It has affected my family life all week

Not applicable
Q5.

In the last week, how much has your AS affected your work life?


It has had no effect

I have been late or had to leave early

I have missed an entire work day

Not applicable
Q6.

In the last week, how often have you been active, for example done your daily stretches or gone for a walk or run?


Not at all

Once or twice

Most days

Every day
Q7.

Which 2 aspects of how AS affects you would you most like to improve?


Family life

Social life

Work

Exercise

Sleep

Fatigue

Travel or holiday

Excellent, you've finished.

SO WHAT NEXT?...
Download your answers and set a diary reminder to come back and do it again soon. This way you can build up a picture of your condition over time and can take this with you when you next see your healthcare team.

Note, the download also includes some additional questions for you to fill out by hand that will help you keep track of your condition. Print the sheets and keep them all together so when you next meet your doctor you can ensure you cover off everything you need to discuss.

Thanks for downloading your answers.

NOW WHY NOT SET A CALENDAR REMINDER?
Click on the boxes below to set a calendar reminder to regularly complete these questions. This way you can monitor and build up a clear picture of how your condition is progressing to discuss when you next have an appointment with your doctor. Simply complete the form below.

Select date:  

Select time:  :

Add to Calendar 09/17/2018 08:00 AM Europe/London Complete AS Questionnaire Visit www.shapeyourasfuture.co.uk and complete the questionnaire. Download answers for discussion at my appointment.
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These questions have been developed by a group of people with AS and relevant healthcare professionals. No personal data is collected from your answers - read more.

How is the data being used?

If you use the questionnaire functionality of this website, your answers are only stored on your device. If you request a PDF download of your answers, they are sent in encrypted form to Amazon Web Services EMEA SARL (Amazon) while the PDF is generated. Amazon cannot read your answers and they are immediately destroyed by Amazon after the PDF has been sent to your device. We use “Google Analytics” (provided by Google Inc.) to monitor responses to the questionnaire on an aggregate, anonymised basis. The questionnaire does not require you to provide any Personal Data and Novartis does not collect Personal Data from questionnaire responses.

This website does not collect any Personal Data or require you to register, allowing you to visit our site without telling us who you are. However, if you contact us, we may be required to process your Personal Data.

For further information, please refer to our Website Privacy Notice.

Setting goals can help shape your AS future

Effective conversations with your rheumatologist, GP, nurse or physiotherapist are key to a better quality of life when living with AS.

Working together you can set goals. To help you, we’ve developed the quick questions above. These will help highlight the main concerns you have with AS and act as a reminder of the key points you want to discuss in your next appointment.

And because time with your healthcare team may often be limited, it's a good idea to be prepared in advance. By answering the questions ahead of your appointment you’ll focus on how AS is affecting you, how to communicate that and whether you’re achieving the goals you and your doctor have set.

It's quick to do...

Answer the simple questions above

Download and print your answers

Discuss your results at your next appointment

 

I have AS.
AS doesn't have me.

My name is Raj and 24 years ago I was diagnosed with AS. I set my AS goal to do a 5K walk - now I run marathons.

When I took up running I found it really helped with management of the pain and flares. Now I train 5 days a week and regularly take part in fundraising events raising money for the National Axial Spondyloarthritis Society (NASS).

In 2014 I became the Chair of NASS, a charity dedicated to supporting people with ankylosing spondylitis.

Helpful information

Here you'll find links to information and additional support from NASS.

just diagnosed with AS

What is ankylosing spondylitis?

AS is an inflammatory arthritis where the main symptom is back pain. Symptoms also include early morning stiffness, fatigue and tiredness.

AS Helpline

Get involved

Everyone involved with NASS is part of one connected community with a single underlying mission: to transform the future for everyone living with axial SpA.

NICE guidelines

Your AS journey

Information to help understand your diagnosis and how to manage your ankylosing spondylitis.

ASone community image

The ASone community

ASone is an online community bringing young people with AS together to inform and educate about AS. You can also share your thoughts, feelings and experiences with others.

aching back image

New to AS?

A diagnosis of AS can be daunting. It is important to understand the impact of your condition and how to learn to live well with your diagnosis.