Ankylosing Spondylitis - Shape Your AS Future
Advances in rheumatology mean that achieving the goals you set with your doctor can now be a reality for many people.

Start shaping your AS future by answering these quick questions to help set your goals...

Q1.

In the last week, how much sleep have you averaged every night?


Under 4 hours

4-6 hours

6-8 hours

Over 8 hours
Q2.

In the last week, how long has it taken you to fully get going each morning?


A few minutes or less

Around an hour

Over an hour

I never fully get going
Q3.

In the last week, how much fatigue have you experienced?


Little or no fatigue

I've felt fatigue on a few days but it hasn't bothered me

Fatigue is a problem a lot of the time

Not applicable
Q4.

In the last week, how much has your AS affected your family life?


It has had no effect

My family life has been slightly affected

It has affected my family life all week

Not applicable
Q5.

In the last week, how much has your AS affected your social life?


It has had no effect

I have cancelled some social activities

I haven't felt up to any social activities

Not applicable
Q6.

In the last week, how much has your AS affected your work life?


It has had no effect

I have been late or had to leave early

I have missed an entire work day

Not applicable
Q7.

In the last week, how often have you been active, for example done your daily stretches or gone for a walk or run?


Not at all

Once or twice

Most days

Every day
Q8.

Which 2 aspects of how AS affects you would you most like to improve?


Family life

Social life

Work

Exercise

Sleep

Fatigue

Travel or holiday

Excellent, you've finished.

SO WHAT NEXT?...
Download your answers now and take them with you to your next appointment - they'll help you and your doctor or healthcare professional to start shaping your AS future.

Note the download also includes some additional planning questions that will help you to get even more from your next appointment. Print the sheet and take it with you to ensure you cover all the topics you would like to discuss with your doctor or healthcare professional.

Thanks for downloading your answers.

NOW WHY NOT SET A CALENDAR REMINDER?
If you don't have an appointment coming up soon, click below to set a calendar reminder to complete these questions again before you see your doctor in the future. Simply complete the form below.

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Add to Calendar 09/17/2018 08:00 AM Europe/London Complete AS Questionnaire Visit www.shapeyourasfuture.co.uk and complete the questionnaire. Download answers for discussion at my appointment.
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These questions have been developed by a group of people with AS and relevant healthcare professionals. No personal data is collected from your answers - read more.

How is the data being used?

If you use the questionnaire functionality of this website, your answers are only stored on your device. If you request a PDF download of your answers, they are sent in encrypted form to Amazon Web Services EMEA SARL (Amazon) while the PDF is generated. Amazon cannot read your answers and they are immediately destroyed by Amazon after the PDF has been sent to your device. We use “Google Analytics” (provided by Google Inc.) to monitor responses to the questionnaire on an aggregate, anonymised basis. The questionnaire does not require you to provide any Personal Data and Novartis does not collect Personal Data from questionnaire responses.

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Setting goals can help shape your AS future

Effective conversations with your rheumatologist, GP, nurse or physiotherapist are key to a better quality of life when living with AS.

Working together you can set goals. To help you, we’ve developed the quick questions above. These will help highlight the main concerns you have with AS and act as a reminder of the key points you want to discuss in your next appointment.

And because time with your healthcare team may often be limited, it's a good idea to be prepared in advance. By answering the questions ahead of your appointment you’ll focus on how AS is affecting you, how to communicate that and whether you’re achieving the goals you and your doctor have set.

It's quick to do...

Answer the simple questions above

Download and print your answers

Discuss your results at your next appointment

 

I have AS.
AS doesn't have me.

My name is Raj and 24 years ago I was diagnosed with AS. I set my AS goal to do a 5K walk - now I run marathons.

When I took up running I found it really helped with management of the pain and flares. Now I train 5 days a week and regularly take part in fundraising events raising money for the National Ankylosing Spondylitis Society (NASS).

In 2014 I became the Chair of NASS, a charity dedicated to supporting people with ankylosing spondylitis.

Explore how AS can be managed

Everyone's AS journey is different.

Your experience with ankylosing spondylitis is highly individual and the diagnosis can mean you feel isolated and lacking information. So it's important to be empowered.

Use this tool to understand your AS journey and the care you should receive.

Reference: NICE Clinical Guideline 65

Getting your diagnosis
Coping with your symptoms
Surgery
Glossary
Making decisions together
Coping with flares
MySPA App logo

MySpA App

The FREE app for people with AS.

MySpA can help you stay in control. You can complete assessments, track results, find recommended exercises, create exercise plans and set reminders.

Plus you can save your appointments, store contact details of those who support you and find out more about your condition.

Monitor your condition, tips and advice, exercise library

Download the app for FREE today.
Click below or search your app store for 'MySpA'.

Download on the app store  get it on google play

MySpA is a Barts Health NHS Trust app, copyright 2018. This app was co-developed and co-funded via a joint working project with Novartis Pharmaceuticals UK Limited.

MySPA App screenshots

Helpful information

Here you'll find links to information and additional support from NASS.

just diagnosed with AS

What is ankylosing spondylitis?

AS is an inflammatory arthritis where the main symptom is back pain. Symptoms also include early morning stiffness, fatigue and tiredness.

AS Helpline

NASS helpline

NASS is dedicated to supporting people with ankylosing spondylitis.

Call for a chat on:

020 8741 1515

The helpline is open between 9am and midday, Monday to Friday.

NICE guidelines

Your AS journey

Information to help understand your diagnosis and how to manage your ankylosing spondylitis.

What is Ankylosing Spondylitis?

New to AS?

A diagnosis of AS can be daunting. It is important to understand the impact of your condition and how to learn to live well with your diagnosis.

The AS One community

The ASone community

ASone is an online community bringing young people with AS together to inform and educate about AS. You can also share your thoughts, feelings and experiences with others.

Members days

NASS Members Days

Run by NASS, these fantastic events offer a mix of talks, advice on managing your AS and fun, practical sessions.