In the last week, how much sleep have you averaged every night?
In the last week, how long has it taken you to fully get going each morning?
In the last week, how much fatigue have you experienced?
In the last week, how much has your AS affected your family life?
In the last week, how much has your AS affected your social life?
In the last week, how much has your AS affected your work life?
In the last week, how often have you been active, for example done your daily stretches or gone for a walk or run?
Which 2 aspects of how AS affects you would you most like to improve?
Excellent, you've finished.
SO WHAT NEXT?...
Download your answers now and take them with you to your next appointment - they'll help you and your doctor or healthcare professional to start shaping your AS future.
Note the download also includes some additional planning questions that will help you to get even more from your next appointment. Print the sheet and take it with you to ensure you cover all the topics you would like to discuss with your doctor or healthcare professional.
Thanks for downloading your answers.
NOW WHY NOT SET A CALENDAR REMINDER?
If you don't have an appointment coming up soon, click below to set a calendar reminder to complete these questions again before you see your doctor in the future. Simply complete the form below.
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Effective conversations with your rheumatologist, GP, nurse or physiotherapist are key to a better quality of life when living with AS.
Working together you can set goals. To help you, we’ve developed the quick questions above. These will help highlight the main concerns you have with AS and act as a reminder of the key points you want to discuss in your next appointment.
And because time with your healthcare team may often be limited, it's a good idea to be prepared in advance. By answering the questions ahead of your appointment you’ll focus on how AS is affecting you, how to communicate that and whether you’re achieving the goals you and your doctor have set.
It's quick to do...
① Answer the simple questions above
② Download and print your answers
③ Discuss your results at your next appointment
My name is Raj and 24 years ago I was diagnosed with AS. I set my AS goal to do a 5K walk - now I run marathons.
When I took up running I found it really helped with management of the pain and flares. Now I train 5 days a week and regularly take part in fundraising events raising money for the National Ankylosing Spondylitis Society (NASS).
In 2014 I became the Chair of NASS, a charity dedicated to supporting people with ankylosing spondylitis.
Everyone's AS journey is different.
Your experience with ankylosing spondylitis is highly individual and the diagnosis can mean you feel isolated and lacking information. So it's important to be empowered.
Use this tool to understand your AS journey and the care you should receive.
Reference: NICE Clinical Guideline 65
The FREE app for people with AS.
MySpA can help you stay in control. You can complete assessments, track results, find recommended exercises, create exercise plans and set reminders.
Plus you can save your appointments, store contact details of those who support you and find out more about your condition.
Download the app for FREE today.
Click below or search your app store for 'MySpA'.
MySpA is a Barts Health NHS Trust app, copyright 2018. This app was co-developed and co-funded via a joint working project with Novartis Pharmaceuticals UK Limited.
Here you'll find links to information and additional support from NASS.
AS is an inflammatory arthritis where the main symptom is back pain. Symptoms also include early morning stiffness, fatigue and tiredness.
NASS is dedicated to supporting people with ankylosing spondylitis.
Call for a chat on:
The helpline is open between 9am and midday, Monday to Friday.
ASone is an online community bringing young people with AS together to inform and educate about AS. You can also share your thoughts, feelings and experiences with others.